I belong to this online support group that's made up of people with psoriasis and psoriatic arthritis. So, each day I receive an email with all of the posts from the previous day. This is one of the posts from yesterday:
Hi there, I joined this group last night. I have very mild psoriasis as does my daughter, but my son has very severe psoriasis w/ psoriatric arthritis. He is 22, and has suffered since he was 11. He has used so many different ointments (rx and otc) and pills. He was taking Raptiva shots, and they didn't help it they actually made it worse. So he was switched to Methotrexate and Enbrel shots, the side effects were pretty bad at first. However they started doing the trick, his skin was so clear. Then they stopped working and it came back worse than ever! He is now using some topical rx's (again) and waiting on the approval for Humira. This is really a heartbreaking (from a mother's prospective) trial to see him go through. If anyone has any ideas, or just support I/We would sure appreciate it. Thanks so much, Tami
Man, my body (and mind) are in such a state of relief that I cannot imagine that the Enbrel will just "stop working". My cousin Steve is on Enbrel too, and has been for 5 years, and he's still goin strong on it. So, hopefully I will have a similar experience. I'm keeping my fingers crossed and praying like crazy. But, after this whole experience with the Enbrel, and being reminded of what it's like to NOT have psoriasis, I will never throw my hands in the air and give up. Even if Enbrel stops working, I will do whatever it takes (within reason OF COURSE) to maintain this sense of relief. Thank you JESUS for the clearing, relief, peace and painfree life I am living right now!! Please Enbrel keep working!
Ok, I hope my 5 loyal blog readers don't get sick of me blogging about this. It's just a huge part of where my life is at right now - and OUR life. Mike has been the MOST AMAZING person and husband through all of this. God blessed me with my kind of perfect and each day I'm still shocked that he's MY husband! THANK YOU AGAIN JESUS! :)
And, the post is from a parent who is aching for her son. I know my parents, family and Mike's parents were aching for me too. It was hard for them to know I was so uncomfortable all of the time.
I am so blessed with such an amazing support system!! I really am....
Friday, October 24, 2008
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2 comments:
I'm one of your loyal blog readers! I am soooo happy the medicine is working!! YAAA!
ANGIE!!!!! Thanks for reading my blog and leaving a comment! I hardly ever get comments! Such a treat!
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